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腺樣囊性癌患者赴MD安德森癌癥中心質子治療案例
【本文為疾病百科知識,僅供閱讀】

當肖恩被診斷出患有癌癥時他只有17歲,肖恩當時并不擔心自己的健康問題,他反而關心自己的暑期實習。肖恩住在科羅拉多斯普林斯市,那一年,他是去施里弗空軍基地實習的三位年輕人之一,在那里,他將與工程師共同工作八周。肖恩說:“從小時候起,我對物理就非常感興趣,我的目標是考進權威的大學,畢業后成為一名工程師或者科學家”。
   讓人遺憾的是,腫塊改變了肖恩和他們一家人的生活,多位醫生明確表示,這個腫塊較終會消失,但結果卻令人傷心,腫塊一直沒消下去。 ,肖恩去看了耳鼻喉科的專家。
   2011年4月9日,肖恩被確診為患有腺樣囊性癌,這種癌癥很罕見,一般多發在年齡段位于45-60歲的人。他的母親完全無法接受這個事實,“肖恩一直很健康,沒有得過什么病,現在較擔心的是癌癥是否已經擴散”。
  在丹佛的一家兒童醫院,醫生馬上給肖恩安排了手術,肖恩的唾液腺和11個淋巴結都被切除,術后,醫生發現他的癌細胞還有殘留,介紹肖恩下一步接受放療。
        在網上查閱了腺樣囊性癌基金會的網站后,肖恩的父親了解到質子放療可以治療這種病,他馬上咨詢了腫瘤醫生和醫學專家,大家都一致認為質子治療對肖恩的病情來說是不錯的選擇。在科羅拉多州一位健康輔導師的介紹下,一家人在5月31日來到了位于休斯頓的MD安德森癌癥中心
   肖恩說:“很多人都介紹來安德森接受治療,在我們決定是否接受質子治療之前,也已經打算來安德森了”。
   肖恩的主治醫生,腫瘤放射學副教授StevenJ. Frank博士,在檢查了肖恩的病情后,決定實施質子治療,因為他認為這是較適合肖恩病情的治療方法。6月28號,肖恩開始接受治療。
 
  “肖恩的腫瘤位置靠近舌頭,這是十分罕見的,我們希望通過放射痊愈肖恩的疾病后,他的味覺和吞咽能力還能不受影響”,Frank博士說,“我們通過質子治療可以十分精準的對準腫瘤位置,而不傷害其他組織”。肖恩也覺得物理治療對自己更有針對性。8月12日,也就是開學前三天,肖恩完成了治療,回到了科羅拉多。
  現在這位18歲的少年正在為美好的未來而努力,他并不認為一次癌癥讓他失去了很多,他反而覺得受益很大,“我現在很感恩,因為有過這樣的經歷,生活不只是舒適和便捷,它更是充滿悲傷和痛楚的。有的時候,你在堅持中慢慢學習和成長”。
 
原文鏈接:http://www.mdanderson.org/patient-and-cancer-information/proton-therapy-center/meet-our-survivors/sleonard.html

Meet Our Survivors: Shane Leonard

Shane Leonard, Adenoid Cystic Carcinoma 

When Shane Leonard was first diagnosed with cancer, he worried about what he stood to lose. It wasn’t his health that concerned the otherwise invincible 17-year-old; it was his summer internship.

Shane, who lives in Colorado Springs, was one of three students in the state selected for a paid internship at Schriever Air Force Base, where he’d be working with an engineer, conducting research for eight weeks. “Physics has interested me since tenth grade,” he said. “For a long time, my goal has been to get accepted into a top university and to become an engineer or scientist.”

Unfortunately, the two-centimeter lump on his neck changed everything for Shane and his family. Pediatrician after pediatrician dismissed it as a result of avid violin playing—a swollen lymph node that would eventually go away. It didn’t. Frustrated, the family finally visited an ENT.

On April 9, 2011, Shane was diagnosed with adenoid cystic carcinoma, a very rare cancer normally seen in 45-60-year-olds. His reaction was scientifically pragmatic; with a schedule already crowded with school, the Colorado youth symphony, National Honor Society, two business clubs, cross-country track and preparing for the SAT, cancer was simply another thing to manage.

His mother’s reaction was not-so pragmatic. “I couldn’t believe this was happening,” she said. “He’d always been healthy. And the waiting was horrible—wondering whether the cancer had spread.”

Surgery was immediately scheduled at a children’s hospital in Denver, where his salivary glands, along with 11 lymph nodes, were removed. After determining that the margins of his cancer weren’t clear, the surgeon recommended radiation as the next step.

From visiting the Adenoid Cystic Carcinoma Foundation’s website, Shane’s father had learned about proton therapy, and after speaking with their oncologist and numerous other specialists about it, the family decided proton therapy was a promising option. A health coach in Colorado Springs recommended MD Anderson, and on May 31, Shane, his parents and three younger brothers came to Houston.

“We had a lot of people recommending MD Anderson as the best place to go. We decided to come here even before we knew whether we were going with the proton or photon approach,” said Shane.

After running simulations Dr. Steven J. Frank, M.D., associate professor of radiation oncology and Shane’s physician, decided that proton therapy would, in fact, be the best approach for Shane. Treatment began on June 28.

“Shane’s particular cancer and its location within close proximity to the tongue is extremely rare.  Our goal was to cure him of his disease while preserving his ability to taste and swallow normally following radiation treatment,” said Dr. Frank. “Proton therapy allowed us to create a specialized treatment plan that targeted Shane’s tumor with precision and accuracy.”

As both a patient and a budding scientist, Shane found the experience enriching.
“They found out about my interest in physics, so they introduced me to Richard Amos, the senior medical physicist at the Proton Center,” Shane said. “He showed me all around and gave me a behind-the-scenes glimpse of his work. We spent hours discussing physics, treatment and careers in science and engineering. His words had a strong influence on my goals for the future.”

Shane figures that physics was a coping mechanism for his treatment experience. During this time, he also managed to tour Rice University and achieve near-perfect scores on both the SAT and ACT exams. Shane completed his treatments on August 12, three days before school started back in Colorado Springs.

Shane is now back in school and finishing up his college applications. The now 18-year-old is preparing for his future – one that looks very bright.

In retrospect, Shane no longer thinks about what he lost to cancer. On the contrary, he considers what he’s gained. “My experience here has truly been one of the high points of my life. I’m thankful because it’s given me a better view of reality. If you really want to experience life, it’s not about comfort and convenience. It’s about suffering, sometimes. You persevere and you learn.”


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